This page is for all the people who have lost their fight with Congenital Heart Defects. It is a place to remember them by
ALWAYS IN OUR HEARTS
and
FOREVER AN ANGEL
Seamus Murphy
CHD: Hypoplastic Left Heart Syndrome (HLHS)
Born: 7th Novemer 2006
Gained his wings: 20th January 2008
http://seamusmurphymemorial.org
Zoe Elizabeth Chambers
CHD: Aortic Stenosis
Acquired Cardiomyopathy at 4 months old.
Heart Tranplant: 29th June 2007 for 1 year and 2 weeks.
Born: 21st December 2005
Gained her wings: 12th July 2008
Ezekiel Timothy Bruce
CHD: Coarctation of the Aorta, and Ventricular Septal Defect
Born: 24th September 2007 (3.22pm)
Died: 21st October 2007 (6.45pm)
Click this link to read more about Ezekiel Timothy Bruce
Cody Kirkham-Bradley
CHD: Tricuspid Valve Dysplasia with severe regurgitation
Downs Syndrome
Still born at 25 weeks on the 30th January 2009
Cody was buried on 9th February 2009
Song played: Fly by Celine Dion
Jemma (Cody’s mother) said that this song is ‘a beautiful song
for lost little one’s.
Anthony Murphy
CHD: Double outlet right ventricle,
large pulmonary non committed VSD
and a straddling tricuspid valve
Anthony was unable to walk or talk, he was brain damanged but was learning Makaton, he was also diabetic
and had a pacemaker and tube fed.
Anthony died from severe sub-aortic stenosis and left ventricle
Born: 12th February 2003
Died: 5th July 2005
Lewis Prior
CHD: Hypoplastic Left Heart
Syndrome.
The third stage of surgery was not an option due to a severe leak in his tricuspid valve so he was placed onto
the heart transplant list. Sadly as you know we did not get the call we prayed for and we lost our precious son
“Lewis Jack Prior 05th August 2001 to
April 6th 2004 aged two years
and eight months. Lots of love & birthday hugs. mummy & Daddy, big sister Kelly, brothers Andy & Tom & nanny Marg. xx”
http://www.thelewispriorfoundation.org
The Lewis Prior Foundation on Facebook
Ethin RaiLuc Twigg
CHD: Hypoplastic Left Heart Syndrome (HLHS)
Born: 9th January 2009
Died: 27th June 2009
Clint Schaffer
CHD: TA, TGA, CoA, ASD, VSD, Hypoplastic right vent, Complete Heartblock (non-surgical)
CoA repair and PA banding at 1 week
Pacemaker implant at 1 month
band tightening at 6 weeks
2nd pacemaker implant at 7 weeks.
Born: 26th October 1992
Died: 2nd January 1993 from complications after a pacemaker implant.
Amanda Eisa
Amanda’s parents have set up a page to remember Amanda by on Facebook.
Amanda Eisa Facebook Remembrance Page
Born: 3rd December 1970
Died: 23rd October 2009
Harry Redfearn
My beautiful son, Harry was born with severe Obstructive Hypertropic Cardiomyopathy, profound loss of hearing in both ears and possible Noonans Syndrome. After 11 weeks and 5 days of fighting he lost his fight.
Born: 19th October 2010
Died: 9th January 2011
Lara-Jean Given
Ryan Andrew Hill
CHD: Tetrology of Fallot with Pulmonary Atresia
Born on 13th May 2001.
Passed away on 16th May 2001
Rhys Ullah
CHD: Super Vulva Aortic Stenosis and Super Vulva Pulmonry Stenosis
Born on 25th january 2005
Passed away on 10th July 2007
Jay Ullah
CHD: Super Vulva Aortic Stenosis and Super Vulva Pulmonry Stenosis
Born: 7th July 2010
Passed away on 16th august 2010
Jacqui Doiré
CHD: Tetralogy of Fallot
Born: 5th November 1952
Passed away: 25th January 2012
To read Jacqui’s story click here
Damien Philip Ward
CHD: Dextrocardia, Tricuspid Atresia, TGA, Pulmonary Stenosis and large vsd.
Born: 28th February 2012
Passed Away: 17th March 2012
A Place to Talk: Congenital Heart Disorder Angel Group. This group is on Facebook and was was set up by an adult who has CHD and who lost a her son to CHD. The group is for people who have lost babies and children to CHD. The lady who set the group up also lost her first son, Ryan Andrew, who died at 3 days old from Tetrology of Fallot, Patent Ductus Arteriousus and prematurity. The lady wishes to raise awareness to CHD and CHD angels To join the group, please click on the link Congenital Heart Disorder Angel Group
Remembrance Messages:
From: Vicky Ward
My beautiful nephew Damien Philip Ward 28/02/12-17/03/12 who had tricuspid atresia and 4 other chd’s. Fly high my darling angel glad I had the privilege of knowing you, cuddling you, feeding you, loving you, I will always love you damien, my first nephew, you will always have a special place in my heart I will never forget you, sleep tight my gorgeous angel xxxxxxxxxx
with all my love forever my darling
Aunty Vicky xxxxxxxx 19th March 2012
From: Misty Odom
My little man Damien Jessie gained his wings at 9 months and 20 day. He had a Left Pulmonary Artery Sling. It is so rare that most people have never eard of it. I miss him everyday. It’s been almost 3 months since he lost his battle. Mommy loves you Bubba. 5th August 2010 - 25th May 2011
18th August 2011
From: Angel Garcia
Dear Jace,
Moma misses you very much and wishes everyday that she could be with you again. Its been a month, three weeks and three days now since I last held you in my arms. Soon we’ll be together again and things will be better than ever. I love you my handsome boy. R.I.P -XOXO moma
5th July 2011
From: Natalie Doherty
In loving memory of my daughter Sophie Iris, born 9th November 2007, died 3rd December 2007. She had Williams Syndrome and pulmonary stenosis. Sophie has left a hole in our lives that nothing or no-one can ever fill
Love Mummy Daddy Naomi and Aimee xxx
15th May 2011
From: Hanna Devaney
My Special Little Man Jay I Will Never Ever Forget You. Its Been Two Years And Almost Two Months Since You Became a Star In The Sky 9.01.09. At Just Two Weeks Old I Felt I Had You My Whole Life, Mummy And Your Twin Sister Millie Will Always Love You, Hope To See You Again One Day xxxxxx
1st March 2011
From: Rachel Ashley
Happy 5th Birthday in heaven Zoe xxx
21st December 2010
From: Kymm Bundy
Zoe Chambers, I wasn’t lucky enough to know you sweetie, but I have become close to your mum, and through her I feel like I know you sweetie. It’s your 5th Birthday tomorrow so I just wanted to wish you a Happy Birthday and I hope you are having a lovely party in heaven. Lots of love and god bless XXxxxxxxxx
20th December 2010
From: Pamela Edwards
Zoe Chambers, a darling angel whom I wasn’t lucky enough to have known, but I am now getting to know all about you through your very precious mummy Julie, who like you, is an angel. She works so hard to help other children in your name, so my little angel, walk with her, and help her through the dark times. I know one day you will be together again,when the work is done. You touch everyones life, and smile down on your mummy, your such a precious angel who has made a big impact on peoples lives, god bless you Zoe xx
6th September 2009
From: Pamela Edwards
A darling angel, Lewis. I didn’t know you, but I am now getting to know your very special mummy Karen, and through her I am getting to know all about you dear sweet angel. You looked so beautiful and full of smiles,and you have left many memories which touch everyones heart. Sleep peacefully now angel, your mummy fights on in your name,god bless xx
6th September 2009
From: Alexandra Mouhsine
Thinking of Lewis and his family tomorrow 5 August 2009 which would have been his 8th birthday
From Aisling Carey, mammy to Aaron (8 years old and has Coarctation of the Aorta, Aortic Stenosis, Bicuspid Valve and subaortic stenosis
Hi, I’m just writing to say Hi to Tabea, Ezekiels mummy, what a beautiful little boy you had,a beautiuful little angel, and to all connected with this lovely site.
19th July 2009