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CHD Awareness Week February

Published May 31, 2012 at 608 × 77 in Personal Stories
CHD Awareness Week February 2013

CHD Awareness Week February 2013

  • Home
  • About Us
  • What is CHD
    • Signs and Symptoms of Congenital Heart Defects
    • Congenital Heart Defects v Acquired Heart Defects
    • Pioneers of "Blue Baby" Heart Operations
  • Types of CHD and Operations
    • ALCAPA
    • Aortic Stenosis
    • Arrythmias
    • Atrial Septal Defect (ASD)
    • Atrioventricular Septal Defect (AVSD)
    • Bicuspid Aortic Valve
    • Co-arctation of the Aorta
    • Ebstein's Anomaly
    • Fontan Completion Surgery
    • Heterotaxy Syndrome
    • Hypertrophic Cardiomyopathy (HCM)
    • Hypoplastic Left Heart Syndrome (HLHS)
    • Hypoplastic Right Heart Syndrome (HRHS)
    • Invasive Tests
    • Mitral Valve / Mitral Regurgitation and Mitral Valve Prolapse
    • The Mustard and Senning Procedure for Transposition of the Great Arteries (TGA)
    • Non-Invasive Tests
    • Stage III Norwood Procedure or Fenestrated Fontan
    • Pacemakers
    • Pulmonary Atresia (PA)
    • Pulmonary Stenosis (PS)
    • Pulse Oximetry
    • Tetralogy of Fallot (TOF)
    • Transposition of the Great Arteries (TGA/TGV)
    • Ventricular Septal Defect (VSD)
    • DiGeorge Syndrome
    • Williams Syndrome
  • Related Issues and Information on CHD's
    • Benefits
    • Bacterial Endocarditis
    • ECMO (Extracorporeal Membrane Oxygenation)
    • Feeding your infant with Congenital Heart Defects
    • Life Flight
    • How do Heart Surgery Survivors view their scars?
    • Swine Flu Guidelines for parents of children/young people with Congenital Heart Disease
    • Reflux
    • RSV (Respiratory Syncytial Virus)
    • Travel and Life Insurance for Congenital Heart Defects
  • E - Newsletters
  • Contact Us
  • Faces of CHD-UK
  • Personal Stories
    • Aaron Knox - A Heart Transplant Recipient
    • Desiree versus HOCM
    • Louise and Co-arcation of the Aorta (CoA)
    • Isaac Pry and Hypoplastic Left Heart Syndrome (HLHS)
    • Ezekiel Timothy Bruce
    • Mummy's Tale of (TGA) a blue baby
    • Christopher with HRHS, VSD and TGA
    • Zoe Dickson growing with Transposition of the Great Arteries (TGA)
    • Dounya and Atrioventricular septal defect (AVSD)
    • Stuart Watson with Transposition of the Great Arteries (TGA) - Awaiting a Heart Transplant
    • Charlie with Pulmonary Atresia with Ventricular Septal Defect
    • Mother and Son Living with Tetralogy of Fallot
    • Jeni Busta HLHS Survivor Happy with half a heart
    • Victor Wiggins and life with Transposition of the Great Arteries
    • Hilary living with Transposition of the Great Arteries and minor Stenosis of the Aorta
    • Kate's life with dextro-Transposition of the Great Arteries and Septal Defect.
    • Sienna and Hypoplastic Right Heart Transposition of the Great Arteries and Ventricular Septal Defect
    • Cordelia Griffin and Transposition of the Great Arteries - story so far
    • Kurtis Cunningham and Williams Syndrome
    • Charlie Wood was born with Transposition of the Great Arteries (TGA),Tricuspid Valve and Ventricular Septal Defect (VSD)
    • Emily-Jayne's CoHD Story
    • Mother with Two children who have CHD
    • Rhys - My Miracle!
    • Tiana with Alcapa (Anomalous Left Coronary Atery from the Pulmonary Artery) and Mitral Regurgitation.
    • A Miracle Story: Jeni Busta's Beginnings of Life with HLHS
    • Ethan with Transpositional Arteries, VSD and Pulmonary Stenosis
    • Heart of a Father: Jeni's Story by Paul Sorensen
    • David Watkins - Ironman Life - Racing with a Big Heart
    • Nicole Vickery Borek - My Story - Reason it's a Fabulous Life
    • Stuart Watson finally received a new heart
    • Cordelia with Transposition of the Great Arteries
    • Rob Ward - Life with Coarctation of the Aorta (CoA)
    • Alexandra Marie Miller born with Single Ventricle, Pulmonary Stenosis, and Transposition of the Great Arteries
    • Happy Heart Day
    • Isla-Rose - Our Angel
    • Father and Daughter with Tetralogy of Fallots
    • Thomas Ellis living with Transposition of the Great Arteries (TGA), Ventricular Septal Defect (VSD) and Pulmonary Stenosis
    • Congenital Heart Defects Awareness to me means....
    • Christopher Pena was born with a Left Ventricular Non-Compaction Cardiomyopathy
    • Iolan's Surgery Story
    • Colin Sanders - a Sweet Angel
    • Nisha Van Wyk an adult living with Transposition of the Great Arteries
    • Jacob D Thorley with Tetralogy of Fallots (TOF)
    • Harvey Castel-Nuovo born with complex Pulmonary Atresia
    • Aaron's Journey - so far
    • Olivia Ayris with Mitral Atresia
    • Xavier's Heart
    • Trevor Christopher Berg - Truncus Arteriousus with Hypoplastic Arch and Ventricular Septal Defect (VSD)
    • Jessica Goffard living with Tricuspid Atresia with Ventricula Septal Defect, Atrial Septal Defect and Mitral Valve Prolapse
    • Riley with Transposition of the Great Arteries (TGA)
    • Tristan C with Hypoplastic Left Heart Syndrome (HLHS)
    • Tyler Philip Kingston - Double right sided Ventricula Septum Defect
    • Joshua Mark Kingston with Tetrology of Fallot, Pulmonory Atresia with Ventricular Setpum Defect (VSD) and DiGeorge syndrome (22q11)
    • Alissa Grimes with Coartaction of the Aorta (CoA) and Transposition of the Great Arteries (TGA)
    • Tanesha's Fight with Complete Atrioventricular Ventricular Septal Defect (AVSD)
    • Niamh with Coartaction of the Aorta (CoA) and Left Atrial Isomerism (LAI)
    • Logan has Pulmonary Atresia with Ventricular Setpal Defect (VSD)
    • Caylen with Heterotaxy and several other major and minor defects
    • Glebby living with William's Syndrome (Sindrom Williamsa)
    • Joel's Story: A life with Aortic Stenosis
    • Ellie M O'Neills Story: Pulmonary Atresia
    • My Miracle: Ben with Coarctation of the Aorta (CoA), Bicuspid Valve, Aortic Stenosis and Ventricular Septal Defect(VSD)
    • Liam Matthew Hackett with Mitral Stenosis
    • Zoe Chambers
    • Luke with a Complex Collection of CHD's
    • Joe with Aortic Valve Astresia, ASD, VSD and Hyperplastic Aortic Arch
    • Me (Catherine) and My CHD (Truncus Arteriosus)
    • Our Amazing Grace
    • Yasmin living with Tetralogy of Fallot (TOF)
    • Madilyn Alivia Gettis born with Tricuspid Atresia
    • Alejo and Stenosis of the Aorta / Alejo y su Estenosis aórtica
    • Mildred Chan - Living with a Heart Defect to only find out that it was a different heart defect when she was an adult
    • Sarah McKain growing up with Truncus Arteriosus
    • Harry Edward Redfearn
    • A Husband's Perspective
    • My Life with Tetralogy of Fallots
    • Cycling 1000 miles to Work
    • A mother giving hope for the future
    • Elizabeth Berry diagnosed with a CHD at the AGE of 25
    • Jacqueline Doré and her inspirational life with Tetralogy of Fallot
    • Joshua's story by Mum, Sarah
    • Carol's Story
    • Alex's CHD story
  • CHD Angels: A place of remembrance
  • The ABC's of CHD's
  • CHD Research
    • Gene Research
    • Research News
  • Organ Donation
    • Transplantation and Religions
    • Resources for Parents and Children about Transplants
    • All Party Parliamentary Group for Transplantation (UK)
    • TACKERS is a Transplant Adventure Camp for Kids
  • Raise Awareness
    • Petitions
    • Flyers and Brochures
    • CHD Awareness Week 2012
    • CHD Awareness Week 2013
  • Adult Congenital Heart Services under review
  • Fundraising Events
    • Guess Olivia's Baby Weight Competition
  • Fundraising for a Multi-Function Patient Monitor
    • Mum-To-Be's unborn baby diagnosed with AVSD
    • Jessica Collacott with Exomphalos and Ventricular Septal Defects (VSDs)
    • Mason with Coarctation of the Aorta and FOUR Ventricular Septal Defects (VSDs)
  • Blogs wrote by Adult CHD'ers (ACHD) and Parents whose child has a CHD
  • Publications
    • Take a Break Summer 2 Magazine
    • The Herald and on This is Plymouth website
    • The Citizen and on This is Gloucestershire website
    • Newcastle Chronicle: Hand on Heart Blog by Andy
    • Matters of the Heart - Volume I
    • Warrington Guardian: Echocardiogram petition
    • The Manteca Bulletin website
    • The Weekend Sun, New Zealand
    • Lucky to be alive mum - Lynn News
    • Times Union - Two Hearts Beat as One
    • Winter Charity Ball Promotion Article
  • Congenital Heart Defects Books
  • Book Reviews in relation to Congenital Heart Defects
    • Bill Coon - SWIM: A Memoir of Survival
    • Sabrina: The Girl with a Hole in her Heart
    • Born with a Broken Heart by Annette & Rick Gallegos
    • Zip-line by David Humphreys
  • CHD-UK's Flyers, Leaflets
    • Pulse Oximetry Leaflet
    • CHD-UK's Leaflet
    • CHD-UK's Flyer
    • ECHOcardiogram Leaflet
  • Companies, People and Groups Supporting
  • Merchandise for Fundraising and Raising Awareness
  • World Websites
Follow @CHD_UK

You can also donate via texting:
CHDU1971 to 70070.
Max donation is £10.00
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Disclaimer:

The facts and opinions shown in this article are as accurate and up to date as possible, but are provided as general "information resources", which may not be relevant to individual persons. This article is not a substitute for individual assessment and always take advice from a doctor who is familiar with the particular person.

Consult you or your child's physician regard the specific outlook for you or your child.

© 2007 - 2019 CHD-UK. All Rights Reserved
I am not medical personnel & do not intend to take away from your physicians advice. Individual evaluation by an experienced peadiatric or adult congenital cardiologist and cardiac surgeon is needed to determine proper diagnosis and the best course of treatment. I am only here to help raise awareness, educate & inform through life experiences.